May 5, 2009...9:47 pm

Update

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I have had quite a lot going on, and have been neglecting the poor blog.  So, here is what is new… blurb style a la Facebook;

  • I got another job.  I am now working 7 days a week,  averaging out to around 45 to 50 hours.   The new job is at a local garden center and nursery, and I really like it.
  • I have a ton of photos to upload and post.
  • Aldo was told by two different highly respected surgeons that no one will touch his back;  he has too many problems.    The neurosurgeon, the orthopedic surgeon and the pain management guy suggested he apply for disability.  So…
  • Aldo is having out-patient surgery on his back tomorrow in hopes of alleviating some of his back pain.  It is called an RF Rhizotomy, and sounds barbaric.   I took the day off… it will be my first day “off” in 20 days.
  • I started Timothy on melatonin on the advice of some MDC moms.  After some fooling around with the dose I think we got it right.  It seems to really help him get to sleep, and I can tell a big difference when he does not take it.
  • Timothy also started taking a different type of fish oil.  I forgot to give it to him for 4 days and…
  • The school called Monday.   When I came home, Timothy had a huge welt on his forehead and big scratches running from under his eyes down his cheeks.  He looked terrible.  I took a photo to show the therapist.    A substitute teacher told him he would get detention if he did not participate, and he freaked out.   I asked him why, why would he do such a thing to himself?  He said it’s because he deserves to be hurt and we will not hit him.   So tomorrow after Aldo’s appointment…
  • I go to the school.  Again.
  • The Autism Society people never called or emailed.  WTF?  I was so happy to find them, I called three times and emailed four.  I quit.  I feel very, very alone.
  • Did I mention I have eggs to hatch on order  & an incubator lined up?  Because what I need is more things to take care of.
  • Our application for Medical Assistance for Timothy’s  wrap around services has been denied twice now because we make too much money.  Never mind that any child with a disability is automatically eligible under PA state law.  I am beyond frustrated, and tired of dealing with health insurance.
  • Our therapist is moving in June, which means Timothy will have to adjust to another one.  He was just starting to talk to this one!   Crap.
  • A co-worker’s mother passed away and while they were cleaning out the barn they found a litter of week old kittens who’s mother had gotten run over the day before.   I took them.  They were very sick, and the smallest one died.  The other three are doing great and are now about 3.5 weeks old.  My lovely neighbor and I have been sharing kitten care, thank goodness because I could not do it alone!
  • The peas and spinach are sprouting in the garden :)

5 Comments

  • raisingsmartgirls

    Oh, wow. How awful that so many things are going wrong at this time in your life. I’m sending good vibes your way that the negative things get better. Hopefully the melatonin works for Timothy. I know my daughter gets bad when she doesn’t get enough sleep. Most times she wakes up between 3 and 5 am to climb into bed with us, and I’m sure that interrupts her sleep enough to make her behavior worse.

    Wishing you peace and renewed energy to deal with all the stress.

  • OMG, does the freaking school not have anything in place to inform subs about Aldo’s issues????

    *sorry–mini-rant because I have SO been there*

    Whew, I wish I could give you some big, helpful pointers, but I am stuck in the same piece of crud wad of insurance and behavior issues, myself. If you ever need to vent or talk or whatever, please email me, girl. You are NOT alone, EVER. *sorry again to yell…but I feel so strongly about us all supporting each other*

    I have a long list of different types of funding parents can receive to help pay for services for kids on the spectrum, even if they make too much money for others. Let me know if you’d like it.

    I wish I could send a hug over the interwebs…I’ll be thinking of you!

  • Thanks guys. It’s not all bad really, it just looks that way on “paper” I guess! I admit though, between Aldo’s back problems and Timothy’s behavior issues I feel like driving away and never coming home some days. Thank God the chickens can wait and someone is helping me with the kitties :)

  • cathairsandchocolate

    I am months behind on my blog reading, so this update actually helped me catch up a bit. I’m sorry about all the stress life keeps throwing at you. You handle it amazingly, but I still hope things ease up for you soon. ((Hugs))

  • This post made me cry. I read your most recent post first and upon reading this I just started to blub. What a good person you are. We need more of you in our often cold-hearted world.

    I am sorry so much is going on that is troublesome. I hope things get easier soon. Love to you and all the family. Bless you for saving those little kitties.


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