The other day, I was reading a blog I adore by a lady who has a son with Aspergers (both of whom I am sure I would also adore if I were to ever meet them). The post was about the blogger’s child, and one of the comments read something to the effect of “I love how you don’t write about your child as if he were broken”. It was a nice comment for a nice post, but it bothered me, nagged at me, stuck in my head and followed me around.
I thought about that comment for more than a week, turning it over in my head when ever Timothy did something odd. I thought about it as I sat at the big round conference table at the school last week. I thought about it when someone asked me for my blog address. Do I write as if my child were broken? I wondered.
I write about Timothy because I love him. I love his quirks, the way he knows random facts about almost everything under the sun, the way he squints when he is thinking hard. I love the way he hoarded a billion paper tubes and turned them into an army of Paper Tube Monsters. I love how he has “Steno pads and yellow pencils” on his Christmas list.
I also write about Timothy because his behavior and other people’s reactions to him are hard for me some times. It’s hard for me to talk out loud to people in my Grown Up Life. Your kid smashing himself in the head, having a toddler-worthy melt down in school or asking if Hasbro makes adult sized sit-n-spins is not really water cooler conversation. Sure I can share with pride his stellar grades, but do they want to hear about how he has been wearing the skull & cross-bones ear wrap for two weeks, daily, even to bed? Do they want to know why I am on a first name basis with most of the school staff? I think not.
It’s me that’s broken, I realized. My heart breaks every time the school calls. I feel like a little bit of my soul cries when I look at the old photos… Timothy in a full Elmer Fudd type hunting cap for months worth of photos… and then look at him now with those damn ear wraps on. I hate going to the school. I don’t like calling people, arranging services, ferrying Timothy to therapy and appointments all over the friggin state. I hate choosing between sounding like “one of those mothers” or explaining the real reason why I go on every. single. field trip. And I don’t like it when people look on us with pity because Timothy “has issues”. Yes, I am broken. I feel shattered some days.
But other days, I feel blessed.
My child is whole, healthy and bright. He is polite, compassionate and generous. I tell myself, look at Bill Gates. I bet he wants to sleep with a heavy quilt all year. I talk to the young man who owns the book stand at the market. He spent hours arranging all of the books by an invisible Dewey Decimal system and know exactly where each one is. I ask a heavy-set man in a black duster (who looks oddly like the love child of Comic Book Man and Silent Bob) about advice on graphic novels and listen as he launches into an unstoppable diatribe against Manga while piling books into my arms.
It is not Timothy who is broken. Timothy will be just fine. But it seems to be a mother’s duty to feel she has failed in some way, and mine just happens to come in a neat package with a label.










